...ites; (l) what information are/were MS patients given about the pilot testing and how their information will be/was protected and used, (i) is/was participation voluntary, (ii) can/could patients pull out of the testing at any time, (iii) what health information is/was being tr
acked at each pilot site and at what time intervals, (iv) what health information is being/was tracked about CCSVI and impacts of CCSVI treatment, including but not limited to use of the following scales, Expanded Disability Status Scale, Modified Fatigue Impact Scale, Multiple Sclerosis Impact Scale, and Multiple Sclerosis Quality of Life Inventory, (v) what h
...[+++]ealth information is/was being tracked about pharmaceutical treatments for MS, (vi) what adverse drug reactions are/were being tracked by MS drug; (m) what is the relationship between the clinical trials and the CMSMS, (i) will data be transferred from one to the other and, if so, how will this happen, (ii) when will it begin, (iii) who will be responsible for the oversight; (n) what are the estimated operating costs annually for the CMSMS and at what sites is/will the CMSMS operating/operate; (o) how much money is/will the CIHR contributing/contribute to the operation of the CMSMS, (i) are/will there be any other partners in the operation of the CMSMS and, if so, (ii) who are they, (iii) what will they each contribute; and (p) how will the results of pilot testing be communicated to patients, the medical community and the general public and by what date is reporting expected to occur? ...